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Posts Tagged ‘recurrent cornea erosion’


Take a wild guess about what I’m griping about this time…..  😆  Ya, more shopping.  *sigh*

Normally, I am not real picky about stuff, nor the lack of it locally, with the exception of a few things. If I can’t find it locally, I’ll go online and order. No biggy.

Pants are generally one item (unless they are sweats) I won’t order online. Usually I won’t order shoes online, but since Vibram has a very clear video on sizing, I followed the directions and was able to order online with no issue.

The one item I cannot make an exception for and order online (unless it’s ridiculously cheap) is eyewear. For all practical purposes, this really means just sunglasses. Before I agree to wear something on my face, they have to fit. And they have to be dark.

Even though I have transition lenses in my eye glasses and I got the darkest ones they have available, they don’t tint darkly enough. The result is that I wear polarized sunglasses over my regular glasses.

Because of my Sjogren’s Disease, I have all kinds of issues with my eyes. The biggest issue is the recurrent cornea erosion. In a nutshell, this means that every time I blink (literally- every time), I stand a chance of my cornea sticking to my eyelid and ripping off. I’ve had this happen during the day, but the most critical time for me is before I open my eyes in the morning.

Over a year after the first episode, and after being in his office for “blips” at least once a month (but usually more), it finally came to a head when, after going in to see my eye guy 4 times in a single day, his daughter called him out of a meeting around 7 pm at night (even though I had seen him a few hours earlier before the office closed) and he met me down at his office.

The determination was that there was no way my cornea would last for a 200 mile emergency drive to have a stromal puncture done. This dealy is where they take a needle and poke it in all over your cornea, which helps the epithelial cells grow “feet” an attach into the deeper layer, and thereby, encourage healing.

I didn’t have that kind of time, though. At that point, my entire cornea was filled will fluid and was mushy; rolling around in my eye and ready to rip the whole thing (including the deeper layers) off. Ya, not good. Waaaaaaaaaaaaaaaayyyyyy more painful than unmedicated childbirth.

The only viable option we had was to have him use a scalpel and scrape that top layer off. I am not exaggerating when I say that that man saved the sight in that eye. After the eye got to the point where we could take some time with it, we decided to try a more permanent solution.

I have punctal plugs in both eyes. Yep. For a fact I can say I have silicone implants.  😆

On my left eye, we started with top and so far, several years later, it’s ok. In the right eye, I have plugs in both the top and bottom ducts. He had never done top and bottom on anyone before (and none since as far as I know), and he has been doing them for years and years in a desert climate where a lot of people take advantage of this procedure.

Now we know it was the Sjogren’s that caused the problem. At the time, we were stumped, and thinking it was leftover from autoimmune disease. Turns out, it never left. At one point, at the annual state-wide convention, I was one of the case studies, and they were trying to figure out how to heal my eye and get it to stick.

Now having this information, it should come as no surprise as to the why my eyewear is so important. I’ve spent several years (and a chunk of change) trying not to go blind. Having proper eye wear is critically important to me.

I can’t leave the sides exposed; wind can go across, dry out my cornea quickly; I blink, and there it goes.  Something gets in there? Scratch, and there it goes. My eyes don’t heal normally. This kind of injury usually repairs quickly- the cornea has the fastest healing tissue in the body. Two of my kids have had scratched corneas, and by the next morning, they were more or less back to normal. Me?  I’d be a week out and still have a grossly swollen eye, sitting in the dark, trying to de-juice my cornea.

The Sjogren’s also leaves me highly sensitive to light. Bright light is extremely painful. Glare is painful. So don’t go yelling at me to take off my glasses just because you want a picture without tinted glasses in it!

Anyhow. I gots ta try ’em on. They gots ta fit. They gots ta fit right.

And I’m annoyed that I can’t find anything but $100+ glasses locally. Honestly, the eyes/glasses situation is one of the biggest reasons I run indoors. Now that my oldest dd is going to run with me, the dreaded shopping has begun. Still, because of the house gremlin running around here, I don’t feel like I can spend that kind of $$$ on something that may get taken before I even get to wear them for the first time. See the dilemma?

I think, before I invest in glasses, I will try to find an old pair and hope they don’t bruise my nose. Then, if being outside doesn’t kill me (like hunny thinks it will), I’ll be in a better frame of mind to think about finding the right ones.

Next, I’ll have to think about gloves and arm warmers for my Raynaud’s……. 😆

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